Institute for Human Development

Sharon and her son, Bobby, represent an important, but not always acknowledged part of the lifespan of supporting someone with a disability. She and her son are aging. Hear about the supports that Bobby has in his life outside of his family – employment, extracurricular activities, and community engagement and the journey they went on to get there.

LISTEN TO THE PODCAST: https://linktree.com/accessiblepod
READ THE TRANSCRIPT: bit.ly/3UT02ep

Accessible is a podcast that opens the door to disability leaders and their ideas and is hosted by George Gotto, director at the University of Missouri-Kansas City’s Institute for Human Development and Amelia Reighard, IHD’s director of Program Development. In this episode, George and Amelia talk to Sharon Williams, a longtime member of the Missouri Developmental Disabilities Council (MODDC), a retired attorney, and a parent of an adult son with a developmental disability.

Sharon has also been a vital member of UMKC-IHD’s Advisory Leadership Team as she has provided feedback on programs that impact individuals and families.

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.

Members of the University of Missouri-Kansas City’s Institute for Human Development are at the Aging with Developmental Disabilities Conference May 20-21 in St. Charles, MO.

As a platinum sponsor, IHD is proudly supporting the conference with a number of employees attending including Kelli Barton, Britney Burkart, Candace Cunningham and Kamryn Rice.

PICTURED: UMKC-IHD’s Candace Cunningham talks with a visitor at the IHD table.

This episode of ACCESSIBLE: The Podcast features Katie Arnold, an inclusive researcher and disability advocate at the Department of Disability and Human Development at the University of Illinois Chicago.

Arnold intimately understands the sibling experience as she grew up with a sister with an intellectual and developmental disability. Arnold founded the Sibling Leadership Network, which provides support and resources for siblings of individuals with disabilities.

Hear Katie talk about her newest project, the Future is Now, a curriculum that walks families through how to plan for the future, ask difficult questions and make sure everyone’s needs are met. The Future is Now curriculum is available virtually for anyone, anywhere.

LISTEN TO THE PODCAST: https://linktree.com/accessiblepod
READ THE TRANSCRIPT: bit.ly/3UQe8yD

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.

Accessible is a podcast that opens the door to disability leaders and their ideas and is hosted by George Gotto, director at the University of Missouri-Kansas City’s Institute for Human Development and Senior Research Assistant Amelia Reighard.

Pictured L-R are Kri Korte (mom with lived experience) and UMKC-IHD Maternal and Child Health team members Bryce Starr and Danielle Chiang, Ph.D.

Two members of the Maternal and Child Health Team at the University of Missouri-Kansas City’s Institute for Human Development recently joined a mother with lived experiences at the Association of Maternal and Child Health Programs’ national conference in Oakland, Ca. Danielle Chiang, Ph.D., Bryce Starr – both from UMKC-IHD – joined Kri Korte, a mom with lived experience, to present a session titled, “Beyond Stories: Integrated Lived Experience to Drive Systems Change.”

The UMKC Institute for Human Development’s Maternal Health Action Network set an example for other states for partnering with those with lived experiences and demonstrated how important it was to include their voices in changing statewide systems.

Chiang also recently presented at the 2024 Missouri Children’s Trauma Network Training Summit in Columbia, Mo., where she discussed how maternal health relates to behavioral health (mental health and substance use) and trauma to both the mother and child. She also included resources and system updates about the Children’s Division and the Prison Nursery Program, and the work with Missouri Maternal Health Action Network.

The Maternal and Child Health Program at the University of Missouri-Kansas City’s Institute for Human Development, as part of its research with the Team for Infants Exposed to Substance Use (TIES) Program, has published an article with the Health & Social Care in the Community Journal. Findings show that home-based family support programs can increase goal attainment because of the therapeutic relationship developed between home visitors who provide support to participants.

The Maternal and Child Health Program is part of UMKC-IHD’s Early Childhood Innovation Center. This particular research aims to improve the health and well-being of the highly vulnerable maternal and child population that has been exposed to substance use disorder (SUD).

READ THE FULL ARTICLE.

Authors include:
• Danielle F. Chiang, Ph.D.
• Stephen Gardner
• Emily Siedlik
• Oneta Templeton

Through Children’s Mercy Hospital in Kansas City, UMKC-IHD’s Maternal and Child Health Program implements the research and evaluation plan for the TIES Program to demonstrate the efficacy of the TIES model to families affected by maternal substance use. TIES is supported by funding from the Health Resources and Services Administration (HRSA) along with other funding sources.

The Missouri Disability and Health Program (MODHP), at the University of Missouri-Kansas City’s Institute for Human Development, is offering two free, online and self-paced Healthcare Provider Responsive Practice Trainings at bit.ly/3UfXtmk.

The trainings offer healthcare providers up to 1.5 Continuing Medical Education (CME) credits for free and an opportunity to develop skills and knowledge to provide quality care to individuals with disabilities.

Healthcare providers will learn best approaches to provide disability-competent, responsive care. The two trainings are:

• Providing Health Care and Screenings to Individuals with Disabilities
• Accessible and Adaptable Communication

The trainings, created by New Hampshire’s Disability and Health Program, were selected in partnership with the 10-State Disability and Health Program Workgroup funded by the Center for Disease Control and Prevention.

In Season 3 Episode 3 of ACCESSIBLE: The Podcast, Karen and Candace Cunningham, an amazing mother-daughter duo, talk about Karen’s role as mother and Candace’s first advocate. Learn about their journey through diagnosis to transitioning to adulthood. Hear the amazing story about how Karen taught Candace to advocate for herself and get out of her comfort zone.

LISTEN TO THE PODCAST: https://linktree.com/accessiblepod
READ THE TRANSCRIPT: https://bit.ly/3UykYbX
VIEW THE VIDEO: bit.ly/3U9dJFX

Accessible, the podcast that opens the door to disability leaders and their ideas, is hosted by George Gotto, director at the University of Missouri-Kansas City’s Institute for Human Development and Senior Research Assistant Amelia Reighard.

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.

Pictured L-R: Nancy Carter (UMKC-IHD); Michael Abel (UMKC-IHD); John Colombo (KIDDRC); Rodney Samaco (AUCD); Rene Jamison (KU-LEND); Alexis Petri (UMKC-IHD); Chase Mulvaney (AUCD); Colette Canchola-Cox (UMKC-IHD); (front) John Tschida (AUCD); (back) Nathaniel Dare (MO-LEND); Michelle Reynolds (UMKC-IHD); George Gotto (UMKC-IHD); Helene Houston-Reed (UMKC-IHD); Brandon King (UMKC-IHD); Amelia Reighard (UMKC-IHD); Evan Dean (KS-UCEDD); Margeaux Whitehead (AUCD); Matthew Mosconi (KIRRDC).

The University of Missouri-Kansas City’s Institute for Human Development hosted leaders from the Association of University Centers on Disabilities (AUCD) and representatives from Kansas and Missouri for a regional open house. The goal was to explore new opportunities for collaborating on programs, funding, networking and more so each could better serve people with disabilities.

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory.

Along with UMKC-IHD, members from the Kansas LifeSpan Institute (UCEDD), the Kansas Intellectual and Developmental Disabilities Research Center (KIDDRC), and the Missouri and Kansas Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs discussed:

• Fostering collaboration between the regional partners
• Informing the national AUCD organization on the needs of centers that serve people with disabilities in this part of the country
• Strengthening ties within the UCEDD network to better serve individuals with disabilities

As an applied research and training center for human services, UMKC-IHD reports to the Office of the Provost and serves as a bridge between the university and community.

Pictured left to right: Michael Abel, Ph.D., director of the Early Childhood Innovation Center at UMKC’s Institute for Human Development; Nick Bollinger, research assistant; and senior research assistants Ryan Belew, Maya Szafraniec and Satya Golla.

Members of the Early Childhood Innovation Center from the University of Missouri-Kansas City’s Institute for Human Development gathered in Philadelphia as they presented papers on a couple of topics at the American Educational Research Association Conference this week.

Research Assistant Nick Bollinger discussed his paper on “Factors That Predict Staff Turnover in Early Childhood Education Programs.” His research is based on assessment data from a recently launched, robust quality-improvement initiative. It examines various administrative practices in early childhood programs that may affect staff turnover.

Senior Research Assistant Satya Golla presented a paper on The Relationship Between Administrative Program Quality and Organizational Equity in Early Childhood Programs. Her study examines 197 early learning programs that found a positive relationship between administrative program quality and organizational equity.

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.

⁠The American Educational Research Association (AERA), a national research society, strives to advance knowledge about education, to encourage scholarly inquiry related to education, and to promote the use of research to improve education and serve the public good.

In Season 3 Episode 2, IHD Director George Gotto and Senior Research Assistant Amelia chat with Colette Canchola-Cox, director of UMKC-IHD’s Missouri Family to Family program. Colette talks about the social consequences of a developmental disability diagnosis and how a strong peer support network can have a positive impact.

LISTEN TO THE PODCAST: https://linktr.ee/accessiblepod
READ THE TRANSCRIPT: https://bit.ly/3xvv3x4

Accessible is the podcast that opens the door to hear disability leaders discuss their ideas.

Colette shares her personal experience as a mother of a son with Autism and talks about navigating the developmental disability system. Now, as a professional in the field, she leverages that knowledge to advocate for families in our state.

The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.

https://mofamilytofamily.org/ ⁠⁠

Join the University of Missouri-Kansas City’s Institute for Human Development as we honor the unique perspectives of people living with autism and support children with autism and their families, helping each child reach their full potential.

Foster inclusivity and connectedness while celebrating differences to promote autism acceptance and each individual’s unique abilities! 

#UMKCIHD #mof2f #moactionnetwork #AutismAwarenessMonth

Welcome back to the third season of Accessible!

Accessible is the podcast that opens the door to disability leaders and their ideas. Accessible features the Institute of Human Development’s own director, George Gotto, and senior research assistant Amelia Reighard. Accessible features interviews and insights from leaders in the disability field. By listening you can gain knowledge for your own mind, career and professional development. In turn, share these ideas to help others learn from you. 

• Listen to the Accessible Podcast.
• Read the podcast transcript.

In This Episode

In today’s episode, George and Amelia catch up with Sheli Reynolds, associate director here at UMKC’s Institute for Human Development and director of LifeCourse Nexus. Growing up as a sibling of someone with a disability, Sheli brings a personal perspective to her work in advocacy, systems change, and her development of the LifeCourse Tools framework. This was a fascinating conversation about the landscape of supporting families of individuals with disabilities and how the context of the family is vital in providing care in all areas.

Acronym Guide

• UCEDD – University Center for Excellence in Developmental Disabilities
• LEND – Leadership Education in Neurodevelopmental Disabilities
• HCBS – Home and Community Based Services

Resources in This Episode

• LifeCourse Nexus: ⁠https://www.lifecoursetools.com/⁠
• LifeCourse Showcase – April 23-25, 2024 – Kansas City, Missouri: ⁠https://www.lifecoursetools.com/events/showcase-2024/⁠
• Missouri Family to Family: ⁠https://mofamilytofamily.org/⁠
• People First of Missouri: ⁠https://www.missouripeoplefirst.org/⁠
• Community of Practice: Supporting Families Throughout the Lifespan – ⁠https://www.nasddds.org/projects/community-of-practice-supporting-families-throughout-the-lifespan/⁠
• To learn more about the Turnbull Family:⁠⁠ https://mn.gov/mnddc/ann-turnbull/ann-turnbull-10.html⁠⁠

Accessible is a partnership between the Missouri Leadership Education in Neurodevelopmental Disabilities – or LEND – and the Missouri University Center for Excellence of Developmental Disabilities. LEND’s purpose is to prepare graduate students for future work in the field of developmental disabilities. We hope you enjoy the conversation. 

#UMKCIHD #LifeCourseTools #CommunityofPractice #disability #mof2f #supportingfamilies #leadership #AccessiblePod

Michelle Reynolds, senior associate director of the University of Missouri-Kansas City’s Institute for Human Development, talked about her personal experience of having a sibling with developmental disabilities as she spoke to an audience of more than 500 community leaders, social workers and advocates at the University of North Carolina’s Legacy Speaker Series in early March. The event focused on empowering individuals with intellectual or developmental disabilities.

Reynolds is a key developer of the Charting the LifeCourse framework and tools created for individuals and families. It uses plain language and descriptive imagery to describe guiding principles that help people plan, solve problems, manage transitions and explore at each stage of life, such as planning for retirement, managing health care or thriving with an intellectual or developmental disability. 

She is a leading advocate for supporting families and self-advocates at a national level and has served on the President’s Committee for People with Intellectual Disabilities for former President Barack Obama.

Guess who’s back and better than ever? Accessible – the Podcast – is returning for Season 3, and we couldn’t be more excited!

Get ready to dive into some eye-opening conversations with leaders in the disability field starting next Wednesday, March 27!

FOLLOW ACCESSIBLE NOW wherever you get your podcasts at https://linktr.ee/accessiblepod and catch every new episode as soon as it drops. Plus, for a more visual experience, subscribe to the UMKC-IHD YouTube channel at https://www.youtube.com/@umkcihd, and watch full video episodes of your favorite interviews. Don’t miss out!

#disability #leadership #UMKCIHD #AccessiblePod

IHD continues its growth with the formation of a new team focused on outreach and increasing IHD’s visibility in the community and across the state.  Comprised of Helene Houston-Reed and Candace Cunningham, the dynamic duo will attend events and conferences to build IHD brand awareness, reinforce our reputation and inform and brag about the great things IHD is doing to the people they meet.

Most recently, the pair attended the Blu Valley Special Needs Resources Fair and met with more than 70 individuals – and that was just on their first outing!

The team is targeting about 2-5 events and/or conferences each month. 

If you would like IHD to attend an event of yours, send your information and request to Helene Houston-Reed.

Left to right: Angelina Alpert and Ashley Donham.

The University of Missouri-Kansas City’s Institute for Human Development has taken a giant step in building its Interdisciplinary Leadership in Disability Studies Graduate Certificate program by awarding its first two scholarships to Angelina Alpert and Ashley Donham. Alpert is an employee at the Institute for Human Development.

Funded through a generous grant from The Rehabilitation Institute Foundation here in Kansas City, IHD awarded Alpert and Donham each with the Vivian Shepherd and Merrill Joslin Scholarship for Disability Studies, which covers full ILDS-related tuition costs for two of ILDS students for two semesters. The scholarship required that recipients must already work or plan to work in the disability field and have a grade-point average of 3.0 or higher.

The first recipient, IHD’s own Angelina Alpert, continues to impact policy work and systems change on Sheli Reynold’s team. Her primary project is working on the No Wrong Door Systems contract.  

The second recipient, Ashley Donham, works for the Utah Department of Health and Human Services, Office of Substance Use and Mental Health. Donham says she aspires and works toward “improving state systems to compassionately see and more effectively support individuals with mental illness and developmental and intellectual disabilities; these systems include, but are not limited to, physical and behavioral healthcare, child and family services, specialized courts, and corrections.” 

Watch these two future leaders as they grow throughout and after their time within the ILDS program. 

Learn more about the ILDS Graduate Certificate Program at ILDS@umkc.edu. 

Expanding capacity to embrace people with disabilities topped the agenda at The Institute for Human Development’s quarterly Advisory Team meeting in early March at the University of Missouri-Kansas City. As the University Center of Excellence for Developmental Disabilities (UCEDD) for the state of Missouri at UMKC, IHD’s top advisors focused squarely on how to expand the social scope for people with disabilities so interactions develop friends who don’t have disabilities and who do not serve as an individual’s staff.

Challenges to overcome include the fact that many people with disabilities have been segregated for most of their lives, starting at school age. Then, many are moved to sheltered workshops where they make less than minimum wage. Others may be moved from group services to individualized services, which further narrows a person’s social interactions and ability to form healthy friendships with others who may not have disabilities.

Cassie Webb, IHD principal investigator for the Health Equity program, talked about the importance of health equity, where everyone has a fair and just opportunity to attain their highest level of health.

Webb noted that, “Achieving this requires focused and ongoing societal efforts to address historical and contemporary injustices; overcome economic, social and other obstacles to healthcare; and eliminate preventable health disparities.”

From left to right: Nancy Pennington, executive director, Missouri Association of County Developmental Disabilities Service Boards; Patti Goss, member of People First of Missouri; Sharon Williams, parent; Jeff Johnson, coordinator of Real Voices and Real Choices; Vicki Davidson, retiring director of the Missouri Developmental Disabilities Council (MODDC); Vim Horn, disability advocate, retired; George Gotto, director of the Institute for Human Development at UMKC; Brandon King, director of Operations at IHD, Nicole Noblet, self-advocate.